I started my day at the Congress by strolling through the Parkinson's Quilt Project. More than 600 individuals with a connection to Parkinson's, from 14 countries created panels that comprised the quilts. It was first displayed at the 2010 World Congress in Glasgow, Scotland. There are 39 quilt blocks. Absolutely stunning, inspiring, touching. I've attached a photo sampling and also included a photo of the signature quilt here at the 2013 WPC. Signatures and powerful words of support have been added to the quilt from people attending from as far away as Mongolia, the Netherlands, South America. My favorite signature said simply "to my very brave wife", from her husband. (Pass the Kleenex please.) My signature comment is big and bold and right in the middle on the red square. Would you expect anything less?
This afternoon I attended a 2 hour workshop on "Sleep and Fatigue in PD". Full house attended. It's a big topic for PDers. I took home a lot of information from that session, from the panelists presentations and the attendees during question and answer period. As well an impromptu conversation in the Ladies' Washroom about the subject matter led to even further discussion on the subject matter.
I've been sitting on my numb bum now for 4 straight days, with short walks thrown in for good measure, so I decided to end the day at Dr. Becky Farley and Jillian Carson's Parkinson's Exercise revolution! Yes, it was a revolution...certainly from my rigid body's point of view. The exercises are PD-specific and FUNctional. I plan to continue this program at home. It's very do-able for me, with support and resources just a click away on the internet.
Before I left the Palais de Congress this evening I checked out the Exhibit Hall, where I collected quite an assortment of those must-have wonderful free give-away promotional items - bracelets, pins, pens, information pamphlets and chatted with many great folks along the way. Everyone is there for the same reason. Living Well with Parkinson's and Finding a Cure.
On the way back to the hotel, I found a charming Boulangerie for a delicious take-out and ate dinner here in my hotel room, in PJ's and a TV movie (in English!) It's nice to take time-out. I'm preserving my energy for tomorrow, the last day of this outstanding conference.
Bonne Nuit
~donna
The quilt is beautiful !! I really love what you wrote !!
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